FIRST STEPS

CONNECT WITH
OTHER PARENTS
As a parent you almost certainly have your own particular concerns and questions, but you will find that other parents have a lot to offer. It may feel like you’re alone, and talking with other parents is likely to take care of that.

SPEAK TO YOUR
DOCTOR
You might have questions that aren’t easily answered, but discussing your concerns with your doctor is a good idea for many reasons. Even when there are unknowns and answers you may need to wait for, this is a good time to be reminded that expert, caring people will walk this road with you and your family.

FORM A
CARE TEAM
‘Take it one step at a time’ is good advice in many different contexts, but it definitely applies here, and this is an excellent first step. Your care team will depend on your circumstances and may change over time, but this is the group who will help support and care for your child: the doctors and nurses, teachers and therapists, friends and family members who you will rely on.
