THE DOCTOR VISIT
A Doctor visit can be stressful. Doctors and nurses sometimes seem too busy to listen, and you may have concerns that are not easy to explain quickly. But approaching it like a partnership can really help everyone.
GET READY FOR YOUR VISIT
You’ll share health records but you also want them to know your child. Make a list of things you want to tell them and also what you want to ask.
BOOK A TIME THAT WORKS
Ask for an appointment time that will be best for your child.
CONNECT WITH THE DOCTOR’S OFFICE
Find out how they do things, who your contact will be, how to get in touch.
MEET THE TEAM
If you can, drop by to meet the people and ask their advice about your first visit.
ASK A FRIEND ALONG
A second person can help in many ways while you’re there.
BRING A FAVORITE TOY OR GAME
It’s a great time to have something your child loves with you.
It may not always be needed but it can be a big help afterwards.
Try to keep it short, but now is a good time to speak up.
Write down the questions you forgot to ask or answers you don’t understand.
PLAN FOR NEXT TIME
Every visit should help make the next one easier.
THE WAY WE GET HEALTHCARE IS CHANGING:
Why Care Management Matters
The phrase ‘Managed care’ can be scary when you have a child who needs more support than most. But we all need a system that is effective and affordable for the long haul and it’s helpful to know how care management works and why it matters.
In the US we overpay for healthcare, and as more of us live with challenges the future must be affordable.
‘Fee for service’ means more treatment, medicine, etc.
Care is centered on hospitals
One in five Americans lives with a disability
It’s time to focus on wellness, prevention and healthy lifestyles and on the person as well as their individual needs.
Eating good food matters to everyone
Care is about what we do everyday
Prevention is part of health promotion
Managed care puts the patient at the center of a coordinated system that uses data to improve outcomes.
Healthcare is shaped for each individual
The providers are all connected
The goal is knowing what works best
PEOPLE ARE DIFFERENT
It’s helpful to know that what was once called ‘personalized medicine’ is now known as ‘Precision medicine’. It suggests that better care—more precise and effective—starts with an understanding of the individual involved. That understanding comes from taking everything into account, from genetics and medical history to environment and personal circumstances.Read More
A DIAGNOSIS IS A LABEL
It can get tiring explaining your child’s specific challenges and watching doctors or nurses reading up on the condition they have been diagnosed with. Still, we understand why it matters.Read More