THE DOCTOR VISIT

A Doctor visit can be stressful. Doctors and nurses sometimes seem too busy to listen, and you may have concerns that are not easy to explain quickly. But approaching it like a partnership can really help everyone.

GET READY FOR YOUR VISIT
You’ll share health records but you also want them to know your child. Make a list of things you want to tell them and also what you want to ask.

BOOK A TIME THAT WORKS
Ask for an appointment time that will be best for your child.

CONNECT WITH THE DOCTOR’S OFFICE
Find out how they do things, who your contact will be, how to get in touch.

MEET THE TEAM
If you can, drop by to meet the people and ask their advice about your first visit.

ASK A FRIEND ALONG
A second person can help in many ways while you’re there.

BRING A FAVORITE TOY OR GAME
It’s a great time to have something your kid loves with you.

MAKE NOTES
It may not always be needed but it can be a big help afterwards.

ASK QUESTIONS
Try to keep it short, but now is a good time to speak up.

REVIEW NOTES
Write down the questions you forgot to ask or answers you don’t understand.

PLAN FOR NEXT TIME
Every visit should help make the next one easier.

THE WAY WE GET HEALTHCARE IS CHANGING

The phrase ‘Managed care’ can be scary when you have a child who needs more support than most. But we all need a system that is effective and affordable for the long haul and it’s helpful to know how care management works and why it matters.

In the US we overpay for healthcare, and as more of us live with challenges the future must be affordable.

‘Fee for service’ means more treatment, medicine, etc.

Care is centered on hospitals

One in five Americans lives with a disability

It’s time to focus on wellness, prevention and healthy lifestyles and on the person as well as the problem.

Eating good food matters to everyone

Care is about what we do everyday

Prevention is part of health promotion

Managed care puts the patient at the center of a coordinated system that uses data to improve outcomes.

Healthcare is shaped for each individual

The providers are all connected

The goal is knowing what works best

PEOPLE ARE DIFFERENT

It’s helpful to know that what was once called ‘personalized medicine’ is now known as ‘Precision medicine’. It suggests that better care—more precise and effective—starts with an understanding of the individual involved. That understanding comes from taking everything into account, from genetics and medical history to environment and personal circumstances.

Read More

A DIAGNOSIS IS A LABEL

It can get tiring explaining your child’s specific issues and watching doctors or nurses reading up on the condition they have been diagnosed with. Still, we understand why it matters.

Read More

A LABEL IS A SHORTCUT

The more we learn about the brain, body and environment, the more obvious that seems.

Read More

PEOPLE CHANGE

One of the problems with putting people in a category is that they may not stay in it.

Read More

EVERY KID IS ON THEIR OWN CURVE

You need to know when your child is lagging behind others of the same age, but you need to know it’s not all that matters.

Read More

A PARENT’S GUIDE

There are things we should do to help our families stay healthy, and when you have a kid with challenges it’s a great time to actually start! The truth is that the most important changes we should all make are based on common sense. New research keeps on showing us that some old-fashioned ideas were right all along: when our grandparents told their kids to go outside and play, wouldn’t let them eat between meals and made them go to sleep early on school nights, they were more scientific than they knew.

There is plenty we parents can’t control, but here are some things we can do to help our kids and the whole family.

EATING

The writer Michael Pollan offers wonderfully simple advice: Eat food. Not too much. Mostly plants.

Read More

SLEEPING

There is a saying that if anyone in the house is over-tired, the whole family has a sleep problem.

Read More

MOVING

It can be difficult or impossible for some people to get around without help. Unfortunately, most of us—millions and millions of Americans—act as if we do too.

Read More

RELAXING

Stress is a little like pain.

Read More

CONNECTING

We all need to have other people in our lives to be happy and healthy.

Read More

               

@2022 START HERE